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May 23, 2008

Why I had to lie to my dying mother

American writer Susan Sontag was terrified of death. She beat cancer in the 1970s, and again in the 1990s, but third time around she wasn't so lucky. In a tender account of her final illness, her son David Rieff recalls how he colluded with his mother's fantasy that she wasn't dying - and what this ultimately cost him after she had gone.

From The Guardian:

Screenhunter_01_may_24_1305When my mother Susan Sontag was diagnosed in 2004 with myelodysplastic syndrome, a precursor to a rapidly progressive leukaemia, she had already survived stage IV breast cancer in 1975 that had spread into the lymph system, despite her doctors having held out little hope of her doing so, and a uterine sarcoma in 1998. 'There are some survivors, even in the worst cancers,' she would often say during the nearly two years she received what even for the time was an extremely harsh regime of chemotherapy for the breast cancer. 'Why shouldn't I be one of them?'

After that first cancer, mutilated but alive (the operation she underwent not only removed one of her breasts but the muscles of the chest wall and part of an armpit), she wrote her defiant book Illness as Metaphor. Part literary study, part polemic, it was a fervent plea to treat illness as illness, the luck of the genetic draw, and not the result of sexual inhibition, the repression of feeling, and the rest - that torrid brew of low-rent Wilhelm Reich and that mix of masochism and hubris that says that somehow people who got ill had brought it on themselves.

In the book, my mother contrasted the perennial stigma attached to cancer with the romanticising of tuberculosis in 19th-century literature (La bohème and all that). In the notebooks for the book that I found after her death, I discovered one entry that stopped me cold. 'Leukaemia,' it read, 'the only "clean" cancer.' Clean illness, indeed. My poor mother: to think of what awaited her.

More here.

Posted by Abbas Raza at 11:51 PM | Permalink

Comments

Illness as a Metaphor, should have been listed on the bibliography of this gifted writer.

www.hannahb.wordpress.com/2007/03/31/illness-as-metaphor-or-befriending-the-enemy/

Excellent and thoughtful posting, as usual.

Posted by: Felix E F Larocca MD | May 24, 2008 7:24:42 AM

I probably am in a tiny minority but I am a bit p;ut off by writers who use any and all subjects to write, publish, and in the process do a meal culpa and tell us what perhaps ought best be a private matter. Yes. Death frightens most people. Yes. It is perhaps a good thing to lie etc if it helps in such situations. But that is all a personal matter so honor your mother and let such things remain private.

Posted by: fred lapides | May 24, 2008 9:15:49 AM

My mother is currently battling a dire form of cancer and is likewise unwilling or unable to face the terrible odds. Reading this article has brought some focus and outside perspective on something I myself am wrestling with: Do I aid my mother in her attempt at desperately grasping at straws and hope, or do I try to steel her (and myself) for what is coming? There is no easy answer, there isn't really an answer at all, but I have to decide.

Thank you for posting this here.

Posted by: spgreenlaw | May 24, 2008 11:53:29 AM

David Rieff has always been extremely personal as a writer in his approach to any subject -- that is, you are reading about Rieff having an experience of his subject, and not the subject itself. That may be true of anything written by anyone, because writers cannot but be all over their material. But Rieff has cultivated it rather than sought to create for his readers the freedom from his conscious nearness, or to create for himself the freedom of greater detachment. His life has been unusually intertwined with that of his mother, too. He can only write about all of this -- difficult as it is for him and others.

While his book and the introspections, like the present one, he has produced about the book and its subject, add something to the long shelf of literature about geniuses who are monsters of self-regard -- which beats lit about non-geniuses who are monsters of self-regard -- the book adds more to the discourse about how we die. For ourselves? With the understanding that we owe the best prospects for recovery from grief to our survivors, even as we die? And, how good are survival-enhancing lies at this time of life?

Many readers are too young even to have the cultural memory that I do of this, but doctors in the US and the UK used to routinely withhold from women patients of my grandmother's generation the truth about their fatal illnesses, sometimes not even saying the word "cancer" to them when offering them a version of how they fared. It was thought to be a bit too much, and a woman would often have to ask for news of the gravity of her illness. If she did not ask -- well, 'twas better so. Take away the celebrity intellectual gossip angle, and David Rieff has written an important book.

Posted by: Elatia Harris | May 24, 2008 12:10:47 PM

Elathia, my admired friend, your verbe and pen are more pwerful than the sword!

Kudos to you!!!!

Posted by: Felix E F Larocca MD | May 24, 2008 2:38:20 PM

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