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September 24, 2006

The Rights of the Intersexed

In The New York Times Magazine, what, if anything, should be done with intersexed (or hemaphroditic) children.

At the heart of the controversy is the question of whether intersex children should have surgery to make their genitals look more normal. Chase has talked to thousands of doctors and others in the medical profession, making the case that being born intersex should not be treated as shameful and require early surgery. In doing so, she has assembled an impressive intellectual arsenal, drawing on everything from the Nuremberg Code and its prohibition against experimental medical procedures without patient consent to the concept of “monster ethics” — the idea that we perform questionable medical procedures on certain patients, like intersex people and conjoined twins, when we consider those patients to be less than human. Reports on the frequency of intersex births vary widely: Chase claims 1 in 2,000; more conservative estimates from experts put it at 1 in 4,500. Whatever the case, intersex is roughly as common as cystic fibrosis, and while the outcome of the debate Chase has stirred is directly pertinent to a limited number of families, her arguments force all of us to confront some basic issues about sexual identity, birth anomalies and what rights parents have in physically shaping their kids. Will a child grow up to enjoy a better life if he or she is saved from the trials of maturing in a funny-looking body? Or will that child be better off if he or she is loved and accepted, at least at home, exactly as he or she is?

Posted by Robin Varghese at 01:06 PM | Permalink

Comments

Anyone with any interest in intersex issues (and they are fascinating!) should be reading Alice Dreger.

Posted by: Bill Hooker | Sep 24, 2006 2:38:03 PM

People will debate the surgically "normalization" of a child's genitals to augment its chances for being "better off", but the idea of an alteration of society - economically, environmentally - so that children might be "better off" is met by yawns and smirks, and flinches of discomfort.

Posted by: roy belmont | Sep 25, 2006 3:29:13 AM

Personally, I truly miss the freaks on the streets. Ask yourself: how many giants are living on your block? how many midgets? Diversity is strength, not a weakness.

"Other children will make fun of your child, but we can fix this even before your child is born! It will be easier that way for your child to adapt!"

Nobody seems to be surprised any more when a child is born with 2 arms, 2 legs, and 1 head.

So, hell yeah, let's take away this last bit of individuality too, and 'fix' the whole sexual issue too >:-(

I prefer to be quite unlike everbody else, just like everybody else.

Posted by: Yiri | Sep 25, 2006 8:02:04 AM

Just like you, Yiri, I don't want to be like anyone else.

Posted by: roy belmont | Sep 25, 2006 5:13:36 PM

Why is it wrong to repair a severe disfigurement? Why not repair a child's hair lip, for instance? Infringement on individuality? I dont think yiri would like his/her child to grow up as a freak if the effects could be reduced through surgery.

Posted by: aguy109 | Sep 26, 2006 9:39:29 AM

Actually, I would.

At least my child would have some distinct features to set itself apart from the oh so average majority of our species.

My opinion would be different in cases where the disfigurement becomes life-threatening, though.

Posted by: Yiri | Oct 13, 2006 9:39:25 AM

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